Early feeding practices in infants with phenylketonuria across Europe

Author
Dokoupil, K.
Ruiz, M.
Saligova, J.
Gutierrez-Sanchez, A.
Schlune, A.
Schulpis, K.
Serrano-Nieto, J.
Skarpalezou, A.
Skeath, R.
Slabbert, A.
Straczek, K.
Gizewska, M.
Terry, A.
Thom, R.
Tooke, A.
Tuokkola, J.
van Dam, E.
van den Hurk, T. A. M.
van der Ploeg, E. M. C.
Vande Kerckhove, K.
Van Driessche, M.
van Wegberg, A. M. J.
van Wyk, K.
Vasconcelos, C.
Velez Garcia, V.
Wildgoose, J.
Winkler, T.
Zolkowska, J.
Zuvadelli, J.
MacDonald, A.
Kozanoglu, T.
Lilje, R.
Pinto, A.
Adams, S.
Ahring, K.
Allen, H.
Almeida, M. F.
Garcia-Arenas, D.
Arslan, N.
Assoun, M.
Altinok, Y. Atik
Barrio-Carreras, D.
Belanger Quintana, A.
Bernabei, S. M.
Bontemps, C.
Boyle, F.
Bruni, G.
Bueno-Delgado, M.
Caine, G.
Carvalho, R.
Chrobot, A.
Chyz, K.
Cochrane, B.
Correia, C.
Corthouts, K.
Daly, A.
De Leo, S.
Desloovere, A.
De Meyer, A.
De Theux, A.
Didycz, B.
Dijsselhof, M. E.
Drabik, J.
Dunlop, C.
Eberle-Pelloth, W.
Eftring, K.
Ekengren, J.
Errekalde, I.
Evans, S.
Foucart, A.
Fokkema, L.
Francois, L.
French, M.
Forssell, E.
Gingell, C.
Goncalves, C.
Ozel, H. Gokmen
Grimsley, A.
Gugelmo, G.
Gyure, E.
Heller, C.
Hensler, R.
Jardim, I.
Joost, C.
Joerg-Streller, M.
Jouault, C.
Jung, A.
Kanthe, M.
Koc, N.
Kok, I. L.
Kumru, B.
Lang, F.
Lang, K.
Liegeois, I.
Liguori, A.
Lubina, O.
Manta-Vogli, P.
Mayr, D.
Meneses, C.
Newby, C.
Meyer, U.
Mexia, S.
Nicol, C.
Och, U.
Olivas, S. M.
Pedron-Giner, C.
Pereira, R.
Plutowska-Hoffmann, K.
Purves, J.
Dionigi, A. Re
Reinson, K.
Robert, M.
Robertson, L.
Rocha, J. C.
Rohde, C.
Rosenbaum-Fabian, S.
Rossi, A.
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Abstract
Background: In infants with phenylketonuria (PKU), dietary management is based on lowering and titrating phenylalanine (Phe) intake from breast milk or standard infant formula in combination with a Phe-free infant formula in order to maintain blood Phe levels within target range. Professionals use different methods to feed infants with PKU and our survey aimed to document practices across Europe.
URI
http://hdl.handle.net/20.500.12627/14732
https://doi.org/10.1016/j.ymgmr.2018.07.008
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