dc.contributor.author | Gumustas, Irmak | |
dc.contributor.author | Koc, Basak | |
dc.contributor.author | Zulfikar, Bulent | |
dc.contributor.author | Zulfikar, Haluk | |
dc.date.accessioned | 2021-12-10T13:19:09Z | |
dc.date.available | 2021-12-10T13:19:09Z | |
dc.identifier.citation | Zulfikar B., Koc B., Gumustas I., Zulfikar H., "Persons With Hemophilia of Generation Y and Their Relatives Attitudes and Expectations From Treatment", CLINICAL AND APPLIED THROMBOSIS-HEMOSTASIS, cilt.27, 2021 | |
dc.identifier.issn | 1076-0296 | |
dc.identifier.other | vv_1032021 | |
dc.identifier.other | av_fe80a9be-33ae-4934-9a35-1d0fe59dcbcd | |
dc.identifier.uri | http://hdl.handle.net/20.500.12627/175914 | |
dc.identifier.uri | https://doi.org/10.1177/10760296211000131 | |
dc.description.abstract | This multicenter cohort study aimed to determine the attitudes and expectations of persons with hemophilia of Generation Y (PwH-Y) toward hemophilia and its treatment comparatively with the opinions of their non-hemophiliac relatives. The study was representative regarding quota-control variables of hemophiliacs registered to the provincial representatives of the Hemophilia Society of Turkey in 4 geographic regions and Istanbul. Sixty-four PwH-Y (62 males) and their 56 first-degree relatives (17 males; Generation X/baby boomers) were interviewed face-to-face using mixed data collection method. "Focus Group Study" method was used for qualitative data. Treatment adherence, requirements, and social activities were questioned with a semi-structured form. Treatment adherence rate of the PwH-Y (46.2%) was lower than that perceived by their relatives (71.4%) (p <= 0.05). Vascular access problems were the most common reasons for non-adherence (60% in PwH-Y and 25% in relatives). Among the components the hemophiliacs and their relatives needed most, support for accessibility of drugs/treatment ranked first (41.1% and 45%, respectively), followed by emotional support (26.1% and 32.5%, respectively). For increasing treatment success in PwH-Y, treatment should be personalized and shaped based on personal requirements. | |
dc.language.iso | eng | |
dc.subject | İç Hastalıkları | |
dc.subject | Hematoloji | |
dc.subject | Hematology | |
dc.subject | Health Sciences | |
dc.subject | PERİFERAL VASKÜLER HASTALIĞI | |
dc.subject | Tıp | |
dc.subject | Sağlık Bilimleri | |
dc.subject | Dahili Tıp Bilimleri | |
dc.subject | Klinik Tıp (MED) | |
dc.subject | Klinik Tıp | |
dc.subject | HEMATOLOJİ | |
dc.title | Persons With Hemophilia of Generation Y and Their Relatives Attitudes and Expectations From Treatment | |
dc.type | Makale | |
dc.relation.journal | CLINICAL AND APPLIED THROMBOSIS-HEMOSTASIS | |
dc.contributor.department | İstanbul Üniversitesi , Onkoloji Enstitüsü , Teşhis Tedavi Ve Bakım Hizmetleri | |
dc.identifier.volume | 27 | |
dc.contributor.firstauthorID | 2604595 | |